Getting to Know Our Social Health Network Members

The new Social Health and fitness Network (SHN) delivers space to join with other client leaders. In August, we posted quite a few prompts to the Social Health Network Fb page to act as springboards for being familiar with one a different and forming connections. Local community associates experienced many insights to share!

How summer time warmth impacts them

A single of the concerns we questioned was about surviving the summer months heat: “We’re possessing hardly ever-ending summer season right here on the east coast of the United States. Does warmth have an impact on your health condition?” Overwhelmingly, the reaction was “yes!”

“Yes, incredibly a lot, primarily for my Lupus. Way too incredibly hot can cause a flare, so I have to continue to be great.”

“Yes!!! My mast mobile condition does not allow for wonderful temp manage. The warmth boosts my persistent dehydration and influences the don time of my ostomy bag.”

“Heat only has an effect on CLL (long-term lymphocytic leukemia) clients if they’re previously suffering from ‘night sweats,’ which some have. Insert on top of that hot flashes that some of us also have – and it’s like having a microwave on the inside of!”

“I actually do superior in warmer temperature. The humidity is what tends to make things complicated for me.”

Their wellness journey in 3 terms

A different August prompt questioned about community members’ wellness journeys: “If you could explain your wellbeing journey in 3 text, what would they be?” A number of terms came up consistently.


Numerous respondents selected “empowering” as just one of their words and phrases. They have observed toughness in their well being journey. Sharing and main from sickness provides them a voice and a new purpose.

“Unusual – disabling – empowering!”

“Realizations, hope, empowerment.”

“Empowering, perspective, motivating.”

“Thriving, Empowerment, Hope.”

“Devastated, Prayer, Empowered.”


Yet another word a number of individuals stated was “humbling.” Dwelling with serious sickness strips absent matters that most individuals take for granted. Well being, uncomplicated motion, and doing each day tasks may possibly be demanding. But these difficulties guide to lessons that people in no way expected.

“Unexpected, humbling, strengthening.”

“Definitely humbling.”

“A instructing minute.”


The topic of how complicated it is to stay with long-term ailment also arose. People particularly pointed to agony, dread, and uncertainty.

“Confusing, distressing, mysterious.”

In the key, Uninteresting, can be DEPRESSING, at times Frightening.”

“Learning, dwelling, uncertainty.”

Their Connexion 2022 experiences

August was also the month of the annual Connexion conference. This is a time to gather, learn from 1 a further, and hear from Wellbeing Union leadership. One Facebook prompt questioned about encounters at Connexion: “Thank you so substantially for attending day 2 of Connexion!! What has been your most loved session so far? Have you figured out something new?”


Numerous responses shared an appreciation for networking prospects, specially the chance to network with other patient leaders who are part of the SHN!

“I’m really having fun with meeting other patient leaders, but session-smart I liked understanding today about networking.”

“The networking session was wonderful. I can not wait around to fulfill some new mates tomorrow when we get to community all over again.”

“I especially liked assembly other affected individual leaders in the networking session.”

Health care gaslighting

Another well known session was a person on professional medical gaslighting. Being aware of that other people are also dismissed and ignored by medical practitioners felt affirming to quite a few folks.

“So much . . . surely today’s gaslighting session.”

“The gaslighting panel was good!”

“Today’s clinical gaslighting panel. The dialogue blew my brain in a fantastic way.”

Thank you

We are grateful to people who engaged with these prompts! Thank you for being below and for all the get the job done you do!

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